On Monday Scotty and I went to see the surgeon to receive the pathology from the ALND (axillary lymph node dissection) surgery. Originally the PET scan showed that there appeared to be more than one node involved, however, the pathology came back showing only one. We obviously had questions.

First, and most important, did they get all the tumors out or was there more in there that they some how missed?! After further discussion with the surgeon, and him actually calling and talking with the doctor that had done the dissection, we think the reason the imaging showed more than one node with cancer was because of two reasons. The lymph node biopsied had a metal medical marker clip put inside it. This procedure left an indentation on the node and also removed a chunk to be sent off to confirm that it was cancer. All of that was done prior to the PET scan so it made that node appear to be split in half or more like tightly bundled grapes. The second reason could have been simply a false negative on the PET scan. Bottom line is that all the nodes in the region that had the cancer node were removed.

Second, we wanted to know how many nodes were removed. There was a total of 16 nodes taken out. Each ALND is different because all of us have a different number of lymph nodes. I was told that if you are heavier you tend have more nodes and if you are thinner you have less. This means there is no magic or correct number of nodes that should be removed because it varies based on each individual. And again only one of these nodes came back as having cancer in it.

Overall the pathology report was great news. Not having any additional physical tumors growing is what we wanted and not having any microscopic cells inside any others is pretty amazing.

During that visit I was also able to have my drain removed because it was well under the 30ml threshold. Let me tell you that this surgery was not as painful as the bilateral mastectomy but the drain is 500 times more painful. I’m not sure if it was because of where it was located, the amount of “digging” done on the inside of my body causing bruising, or if I am suddenly becoming a wuss, but holy heaven above did I want that thing out. One other difference from the drains after mastectomy versus ALND was that the incision where the drain is placed takes much longer to close up and heal. With the mastectomy drains I had to wait about 24 hours before I could shower and remove bandages. Today is Thursday and the incision is still not fully scabbed over allowing me to shower.

My mom took this picture about a week after my surgery so I could see where the incision was and how long it was. The puckered looking line is where they opened me up to get out all the nodes and below you can see the bandage, that is where the drain was. The stitches are on the inside and then it is glued together (the puckered skin). Plastic surgeons like to use glue to close instead of stitches to decrease the visible scars after. I guess I got lucky and my surgeon does this. I didn’t know that prior to surgery. In the grand scheme of things this body of mine is no prize. It wasn’t ever a grand showcase but God gave me it and I have tried to treat it like the temple it should be. I have accepted that whenever the end comes for me this body will probably be riddled with more scars than perfection and beauty which I am fine with. Each scar is a visible representation of me fighting to live, and living is all I care about.

Above is a picture I took this morning after I cleaned the drain incision and before I re-bandaged it. Since I did chemo my skin hates all bandages and medical tape. The red surrounding the area is just the irritation from that. You can see bruising and I don’t know why that is there, my guess is from all the digging and pulling during the surgery.

This week I also started doing the physical therapy exercises to prevent lymphadema and to help me regain my mobility back. It is depressing. I am in a full body sweat attempting to do these. Today I also went for a walk. Also depressing because I am slow. No offense to anyone out there but I feel like an 80 year old woman. Mentally I am very frustrated with part. I had just gained back almost full mobility after the mastectomies and was able exercise with 15 pound weights. It has taken a year to get back to that point. Now here I am back where I started. UGH.

Tomorrow I am meeting with my regular oncologist to finalize the treatment plan. Once I am done with that appointment I will post an update.

Scotty and I were ready to get this surgery under way and, fingers crossed, all the cancer out of my body. We got there on time and got prepped for surgery but much like the night before with the MRI we had a long delay. I was scheduled to go into surgery at 3:25. I actually made it into the operating room and scooted onto the table at 6:35. The approximate operating time was an hour and fifteen minutes but it took closer to three hours. There were not any complications, just needed extra time to be thorough I guess. Seems like the theme for this go round is waiting.

This time I was much calmer as I headed into surgery. Last time I was so scared I couldn’t stop the tears from falling. They eventually had to give me something to calm down. But Tuesdays I was chill. It could be that I am becoming numb to it or that God decided to help me calm down. I think it was a little of both. What helped even more was walking into the pre-op room and having this lady as my nurse!

When I saw Michelle I started to cry but I am so, so, so thankful that she was working that day. It made the waiting fun! Michelle and my kids are on the swim team together and all are around the same ages so we have become buds over the years. She was very sweet and told me that if it was weird she could reassign me to someone else but I think God knew I needed someone back there with me.

Since I was waiting so long I got to have everyone shuffle in and out to see me. If my surgery had started on time then my dad would have missed it because he went to the wrong hospital. Oh vey that man is crazy!

I ended up being the last surgery of the day for the hospital so by the time I was up every one was ready to go home. When I got into the operating room the team was pumped up and saying things like, “let’s get this show on the road so we can go home!” I looked around and said, “hey I know you all want to go home, me too, but see this hat, it’s pink because I have breast cancer and I really need you guys to take your time to get it out because this is not my first time dealing with it.” It might have killed the mood a bit but I know how important this surgery is. The nurses all said they knew that and they were going to take care of me. That was the last thing I remember till I woke up in recovery.

Waking up from the anesthetic this time I was really sick. There was no pain from the surgery but I was certain I was going to vomit. This had not happened in the past surgeries but I also would not put on the patch that is suppose to help with nausea. Last time I had that patch was when my eyes were dilating all funky and I couldn’t see (there is a blog post about it with pictures, not doing that again thank you). Also I had almost nothing to eat in 24 plus hours due to the MRI fasting and the surgery fasting. When we got home I made Scott give me one of my pills for vomiting and it kicked in before I heaved.

The doctor told Scotty and my mom that it went well. He was able to get out the cancerous nodes that were found from the scans and “a bunch more”. Hopefully we got them all. There were a few nerves that had to be damaged to get to them but not any major ones. Now we wait for me to heal and then pray that the radiation and stronger chemo treatments kill any remaining cancer cells this time.

Overall I feel okay. There is pain but it is tolerable. I also have the use of my opposite side which makes this seem like a piece of cake. I was able to give myself a partial shower so I don’t stink to high heaven in 105 degree heat. Also, I have to sleep sitting upright which means I am back to the chair. Seriously not a fan of sleeping in the chair, makes me feel helpless. I also have a drain again but that isn’t so bad because I kept all my mastectomy tank tops.

Yesterday I got back the results from the MRI and it came back clear. The doctors are pretty confident that the cancer is not anywhere else. However, I will continue to get scans now to check.

Scans done, check.

Surgery, check.

Up next radiation. I am awaiting a call from my radiation oncologist to get that appointment setup and learn more.

Now I am going to go nap.

I received my PET scan results yesterday and they are pretty good. It does not look like there are any distant metastatic locations. Hallelujah! However it does look like the cancer is in more than one lymph node. Due to that finding the doctor wants to do surgery as soon as we can get me in. Just so happens there was an opening today. So I am scheduled for surgery later this afternoon.

Details on the surgery:

The procedure should be around an hour and a half if everything goes well. We are for sure taking out all the lymph nodes. The incision will go slightly under my armpit from my foob towards my back (not sure anyone cares but in case my fellow breast sisters are reading this and wondering I want them to understand what the heck happens during a lymph node dissection) . I will come out of surgery with a drain.

It was optional to stay over night, which I declined. I mean they hacked off my breasts and I walked out of there the same day. In my head I am super tough, like an American Gladiator. I’m not but I figure fake it till you make it right, lol?! At home I have to take it easy. This means I am back to no lifting which sucks because I was finally back to my pre-cancer workouts and almost able to do a pushup NOT on my knees again. They are telling me that the pain is suppose to be manageable, fingers crossed on that one. If things go according to plan the drain comes out in two weeks, maybe three, and then radiation is up next once fully healed.

Additional updates:

Last night I was at the hospital till 11 getting an MRI done of my brain. Those just straight up suck. If you want to know why I have had a PET scan and now needed an MRI it is because of the way the two scans differ. A PET scan uses sugar to light the cancer up like the 4th of July. Sugar feeds cancer cells so they inject you with a radioactive sugar dye that then goes directly to locations that are sugar fans. Because our brains are constantly working they need a lot of energy so they gobble that sugar up as fast as the cancer cells making it hard to tell if there are any small tumors in the brain. An MRI gives a more accurate depiction of what is really happening in the brain. Since breast cancer loves to travel up there and stake a claim my doctors wanted to double check. Those results should be coming in the next few days. My doctors and I both feel like there is not going to be anything but are trying to be thorough.

People keep asking me what they can do to help and I just do not know. My sweet friends Monica and Lyndsey are putting together a meal train which is great. But I don’t know how many meals we will need right now??

This time I know what to expect. I know that surgery is the easiest part. Right now I would ask for prayers. Prayers that the doctor is able to remove all of the cancer since it is still operable. Prayers that the cancer cells decide to forget to play hide-n-seek and stay out in the open so we can find them and remove them. Prayers that I will be able to endure the discomfort that will come with another surgery. Prayers that my family and friends will feel comfort and stay calm. Prayers that I can fight this thing. So pretty much could you pray?

The next steps on this path are where it is going to be a test of my endurance and faith. Radiation is the unknown but chemo is going to be tougher. Once we hit that point I am sure I will need to rely more on friends and family, especially with the kids. It is hard to ask for help. I truly hate it. It just makes me feel weak, but I know that in the coming weeks I am going to have to ask many of you to shoulder a bit of my burden. I am lucky to have so many willing and able to help, just another blessing, but I am sorry that I have to ask for it again.

My friend Miranda and I were talking yesterday and she said something that sums up how I feel perfectly. I thought I was crossing the finish line but instead found out it had been moved back to the starting line. I’m out of breath, my muscles are fatigued, and I am mentally drained but will continue to push through the aches and pain to cross that line.

People often refer to cancer as a journey. It is not a sprint but a marathon. Unconsciously I thought this was going to be a small marathon, like a half, or better yet, a 5K. Only to find out I got signed up for the Iron Man. I’m a little more beaten down physically to start the race than the first time but I’m not giving up.

Today, the race starts again.

Originally published at bcvsbc.blogspot.com on 4/27/18

The surgery went well yesterday.  In honor of this special day I had my buddy Mike make me some shirts to commemorate it.  Going into the hospital my shirt said, "I have killer boobs",  When I was released to come home I changed into a shirt that said, "I HAD killer boobs". At times like this humor is much needed.

First up was the sentinel node biopsy.  This might have been the most painful thing I have ever had done.  During that procedure I got four shots around my nipple that inject radioactive blue dye into my lymph system.  It then travels though my body to find the lymph nodes that are either blocking the cancer from spreading, OR, are already infected and spreading.  The shots were pretty intense because you aren't allowed to have any numbing to lessen the pain.  Once inside the surgery room and under anesthetic they take a device like a stud finder to locate the nodes that are infected.  Two nodes lit up so those two were removed and will be sent off to the lab. 

Next up they started on the mastectomies.  My left breast is the one that is filled with tumors.  When this surgery is done they try to get a certain amount of clean margins.  Unfortunately the mass that I was able to feel and see was very close to the skin.  This means that we might not have been able to get clean margins.  So we wait to see what the pathology reports say.  IF they find that the margins were not clean I will need radiation.  This is the same if my nodes came back positive. 

I decided to an immediate reconstruction so my plastic surgeon installed the expanders inside my breast.  In order for the expanders to stay in place they used a piece of cadaver tissue to hold them in position.  So not only do I have no breasts right now, I have dead skin in me.  I'm almost a zombie!

For now we are playing the waiting game to see what the doctors find after dissecting my breast tissue.  They say it takes 3-10 days.  I am praying for it to be closer to 3 than 10. 

One thing that was pretty crazy for how intense the surgery was is that I came home the same day.  My parents have been amazing.  The doctors and nurses recommended that I sleep in a recliner because it will help with the swelling and pain.  Scott and I have moved in with parents, not because of my diagnosis, but because we have been trying to move to Ripon.  As soon as my parents heard I needed to sleep in a recliner my dad left the hospital to buy me a recliner for my room.  It was so sweet!

Scott has been amazing through all of this.  He is my cheerleader, my muscle, and keeps me laughing when I want to cry.  I love him beyond words. 

Thank you to all of you that have sent me messages, texts, flowers, and other goodies.  I appreciate it.  I know this fight is going to be hard and I will need all the prayers and help I can get.    Keep your fingers crossed that the results come back quickly and pray that we get clear margins.